Lorraine Nevill’ Story

I don’t do selfies…..(not all illness can be seen – hence the back of my head…ha ha!!) … where are the emoji’s???
Me with my dogs, I now have four….My life savers…even though I’m allergic to them…sighs..
The worse thing before diagnosis was feeling like the biggest hypochondriac on the planet…I have been ill for many years. GP’s were as sick of me, as I was sick…
Finally getting a diagnosis after I (politely) demanded at CT scan was a blessing – or so I thought – I genuinely thought it was just a case of getting the correct antibiotics… Then the bomb shell hit….silly me, it was never going to be that simple. The first 18 months of treatment caused me to be worse than ever. Before the illness I’d been able to cycle 40 miles in the morning followed by 5-10 miles of walking in the afternoon….where as afterwards I could barely manage a mile…on foot or bike..
But, thanks to Graham Atherton, and the facebook site, I found Wynenshawe, and Amphotericin B (the amber nector!) – Life is not the same, and never will be….but, I now have some good days…I’m one of the lucky ones. I just need to get that bike out!….