We proudly present our website!
This website was created by patients who suffer from Aspergillosis. Please navigate around the website to read more about this disease, also the impact it has upon patients and their carers.
Registered Charity Number 1194699
We are a Registered Charity run by patients with the most common types of Aspergillosis. We have the support and guidance from both:-
Dr Darius Armstrong-James, honorary consultant physician in infectious diseases and medical mycology, Royal Brompton and Harefield Hospitals, Guy’s and St Thomas’ Foundation Trust and Clinical Senior Lecturer, National Heart and Lung Institute, Imperial College London.
Dr Anand Shah, consultant respiratory physician, Royal Brompton and Harefield Hospitals, Guy’s and St Thomas’ Foundation Trust. Honorary Senior Lecturer, MRC Centre of Global Infectious Disease Analysis, Department of Infectious Disease Epidemiology, School of Public Health, Imperial College London.
With whom we can consult and refer to on all things medical.
The term Aspergillosis covers a range of conditions. These are lifelong, fungal lung infections which are due to the fungus Aspergillus. These cause allergic reactions, making it difficult to breathe. They may cause lung damage (erosion of lung tissue/cavities) instead or as well. This causes loss of lung function and difficulty breathing. Aspergillosis often affects people with asthma, especially those with severe asthma. It seems to make asthma worse.
The common forms are allergic bronchopulmonary aspergillosis (ABPA) and chronic pulmonary aspergillosis (CPA). ABPA is predominantly a severe allergic disease, caused by the permanent growth of Aspergillus in the patient’s airway. It often makes pre-existing asthma worse. CPA causes severe breathing difficulties (from cavities) and fatigue. In some cases it causes large, frightening lung bleeds and permanent lung damage.
Co-existing infections (or super infections) are an additional problem in Aspergillosis. This is especially where there is lung damage, such as bronchiectasis (permanently widened airways) or cavities caused by Aspergillus infection. Common additional microbes are Pseudomonas and Non-Tuberculous Mycobacteria.
Aspergillosis can also affect people with a weakened immune system, and in this form can rapidly kill. This might be due to cancer chemotherapy. It may also arise from immunosuppressive therapy used to stop organ rejection, in people who have received a transplant.
Other groups of people affected include those with a genetic (inherited) Primary Immunodeficiency Syndrome, or viral/acquired immunodeficiency syndrome such as HIV/AIDs. One of the difficulties with awareness is that illness caused by Aspergillus in people with these other illnesses often goes unrecorded.
Aspergillosis is a rare, debilitating and sometimes deadly infection. It can attack people of any age. Aspergillosis Trust also aims to raise funding for desperately needed research. For more details, please see the resources offered by the Aspergillus website http://www.aspergillus.org.uk