Fundraisers
Fundraisers & Ideas on How to Help Charities
We intend to keep everybody up to date with all the events organised to raise money for AT
The Royal Parks Half Marathon- Sunday 13th October 2024
This year we have 5 runners taking part in this iconic race around London’s many wonderful landmarks and through 4 of the Capital’s Royal Parks. If you would like to help sponsor them the links can be found below
https://www.justgiving.com/page/jacob-stebbings-1721227061113
https://www.justgiving.com/page/tj-theo-aspergillosistrustfundraiser
Dani’s fundraiser in memory of Jill Fairweather
Jill has been a chief supporter and GPS "dot watcher" on all my challenges to date. A truly inspirational individual that has offered great perspective and support over many decades. Always remotely helping the during the tougher bits. We have spent most of the last year putting our heads together for the Wainwrights challenge 2024 and laughing at the bivvy sleeping arrangements. 214 fells, 110,000ft elevation and 325 miles, self supported.
On the 12th July Dani will set off on this amazing challenge. You can support her here
https://www.justgiving.com/page/danielle-blackie-1717444095437?utm_medium=fundraising&utm_content=page%2Fdanielle-blackie-1717444095437&utm_source=copyLink&utm_campaign=pfp-share
Johanna's fundraiser in memory of Jill Fairweather
Jen & Jo are friends and scientists working on Aspergillus, a deadly fungus that causes aspergillosis, a respiratory disease that makes it difficult to breathe. Six years ago Jen launched her citizen science campaign to sample Aspergillus across the UK, and this is how she met Jill Fairweather, and how they all started to work together.
Jo is a qualified yoga teacher and in her spare time loves to teach! On the 22nd June, six years since Jen launched her citizen science campaign and met Jill, the girls will take part in 108 sun salutations.
Why 108 sun salutations? It's traditional on the summer solstice to practice 108 sun salutations. This will be an led online session with lots of variations suitable for all levels, with options for rest throughout. There will also be an extended Savasana at the end.
https://www.justgiving.com/page/aspergillosistrust-108sunsalsforjill?utm_medium=fundraising&utm_content=page%2Faspergillosistrust-108sunsalsforjill&utm_source=copyLink&utm_campaign=pfp-share
London Landmarks Half Marathon
Tower to Tower 2
In 2013 15 cyclists and their trusty van driver cycled from Blackpool Tower to the Eiffel Tower raising over £10,000 for charity.
It is their 10 year anniversary and are doing it all over again. This time raising awareness and with your help hopefully some money for Aspergillosis Trust.
Darren’s wife suffers from this rare, debilitating and sometimes deadly infection. The condition is becoming more and more prominent.
Please support them at:- darren mcneil is fundraising for Aspergillosis Trust (justgiving.com)
The Sweeney Family
This year the Sweeney family are running the Belfast Marathon Relay (and one brave soul running the London Marathon!) in memory of mum and wife Lina Sweeney. Mum passed away in October from Pulmonary Aspergillosis. She had struggled with this illness for the last few years. Please donate and support the family in their challenge - Eamonn Sweeney is fundraising for Aspergillosis Trust (justgiving.com)
Doug Hutchinson
Doug is running the London Marathon in April 2023 and raising money for us. He ran the Royal Parks Half Marathon last year as well. Please support him if you can. Doug Hutchinson is fundraising for Aspergillosis Trust (justgiving.com)
Malcolm Johnston
Our family has been living with Aspergillosis and its effects for almost 10 years. There are different types of the condition, Malcolm has Chronic Pulmonary Aspergillosis.
As it is a relatively rare condition we have found it difficult to source accessible, age appropriate information for our children. Through The Aspergillosis Trust we would love to have some readily available resources made for ourselves and other families in our situation. It would just be one less thing for families to think about after diagnosis ; Knowledge is power.
Maureen and three of the children are going to complete the seven highest mountain summits in Northern Ireland. We will do this by taking on two summits at a time. We have 3 exact dates over 6 weeks planned but, knowing from experience, these dates may change. The challenge will be completed by May and we will keep you posted. Our first hike hopefully will be Saturday 25th Feb. Please donate if you can - Malcolm Johnston is fundraising for Aspergillosis Trust (justgiving.com)
Lorraine and Kevin
Last year Lorraine raised funds by rowing to Wythenshawe Hospital in Manchester. This year she wanted to row there and back, approx 400 miles, and do a half marathon. Unfortunately, she is unable to do the half marathon due to ill health in time for World Aspergillosis Day but her husband Kevin is going to complete the challenge on her behalf. Ever competitive Kevin says he will either row a full marathon or 100km on a static bike.
She is raising money for Aspergillosis Trust for World Aspergillosis Day. Lorraine suffers from Aspergillosis and this charity's main aim is to support all with the condition.
Total raised £560.00 plus £78.75 GiftAid.
Matt Stratton
Matthew is running 5k in memory of his mum, Susan, on 6th November. Sadly, Susan passed away on the 6th November 2021. You can donate here Matt Stratton is fundraising for Aspergillosis Trust (justgiving.com)
Total raised £470.00 plus £87.50 GiftAid
Grace’s Everest Challenge
Grace Jain Dean aged 12 from Thelwall, Warrington.
She is going to do these climbs throughout July and August (school holidays). She will be climbing in Derbyshire, Lake District and Wales.
She hopes to raise over £500.
You can donate and help her to reach her goal and spread awareness. Jill Fairweather is fundraising for Aspergillosis Trust (justgiving.com)
Total raised £115.49 plus £18.75 GiftAid
London Marathon 2022
Royal Parks Half Marathon
This stunning central London Half Marathon, takes in some of the capital's world-famous landmarks on closed roads, and four of London's eight Royal Parks - Hyde Park, The Green Park, St James's Park and Kensington Gardens. Aspergillosis Trust have 3 runners taking part and raising money for us.
Doug Hutchinson, Steven Phillips and Almir Alberto. Please donate to - Doug Hutchinson is fundraising for Aspergillosis Trust (justgiving.com)
Total raised - £675.00 plus £142.50 GiftAid.
Great North Run
This event takes place on 11th September 2022. Dave Cairns is taking part and is fundraising for us. Please support Dave at Lisa McNeil is fundraising for Aspergillosis Trust (justgiving.com)
Total raised £515.00 plus £98.75 GiftAid
Kyle Kuster
Kyle will be running 6K to raise money in memory of his father who sadly passed away recently due to complications due to Aspergillosis.
He will be undertaking this run a few days before his father's birthday. The event takes place on the 6th October and you can read more about Allan and support the event here:-
Fundraiser by Kyle Kuster : Remembering Allan Kuster - An Incredible Father (gofundme.com)
The run was completed on the 9th October. Thank you so much to Kyle and his family.
Yvonne Gibson
Is raising monies for two charities close to her heart (Aspergillosis Trust and Brain Tumour Research).
Her husband passed away 13 years ago with both these illnesses, he was aged 55. Over the years there seems to be a lot of people with Brain Tumours of various kinds. With the Covid pandemic a lot of charities have suffered financially. I have so far managed to raise £375.00. Any contribution amounts, no matter how small, will go to help in research. Thanking you all in advance. This will take place on 18th July 2021.
https://www.justgiving.com/crowdfunding/yvonne-gibson-3?utm_term=XNKMNezJP
Yvonne successfully completed her Skydive on the 18th July.
Maria Giuliani
Maria Giuliani will be running the Brighton Marathon in April. She is going to write a piece about her reasons why she is attempting this.
MARIA’S STORY
Hello all,
I thought I'd share with you my big challenge this year.... I'm going to be running the Brighton Marathon in April! I've never ran a full marathon before, but have run half marathons. It's a big step....literally!
I have CPA and was diagnosed in 2016. Previous to this I had hypersensitivitiy pneumonitis (extrinsic allergcalvelotis), and several pneumothoraxes, (collapsed lung) resulting in a pleurectomy. I won't go into the detail too much about all of these, as I expect you're all familiar/aware of them. However, needless to say, it was a shock to suddenly become so ill at the start of all of this, back in 2006. I was hoping to start university (as a mature student), doing Performing Arts, but had to defer my place for a year because I was too poorly. I couldn't even walk up a flight of stairs and I remember one time having oxygen delivered to me at home.
Previous to all of this, I have always been fit and healthy. I used to run regularly, cycle, aerobics and have always been musical. Suddenly, all this came to a halt. Because of a delay in diagnosing my initial condition, that is where my lungs become scarred, which subsequently brought on Aspergillosis. I remember being in hospital and not knowing what I had as was awaiting to have a biopsy uner general, because I was too ill for keyhole. I was thinking, what is going on... as well as feeling scared.... and fed up of being in hospital.
Moving forward several years, after being on and off steroids, getting better, then getting ill again, being put on anti-fungals (Itraconazole), I was eventually referred to Wythenshaw Hospital, where my condition has been monitored and treated. At the moment, I feel great (apart from the side-effects of a high dose of Voriconazole). I almost feel I don't need the medication anymore, but I know previously that when I stopped, I became ill again. But who knows what will happen. All I know is that I'm making the most of feeling great at the moment and wanted to use this opportunity to raise awareness and funds for the Aspergillosis Trust, as without them, I would be in a very bad way. I would also like to add how grateful I am to my partner for being there for me and especially for driving me all the way to Manchester and back for appointments! That's always a very long day indeed!
So, onto the marathon! I started about 3 weeks late into my training plan, but have steadily caught up. I've not kept to the rigid plan as it requires, as life gets in the way, but I'm doing what I can to keep up! So far, my longest miles training (during a week) has been around 45 miles! I have a 20 mile race this weekend (16th March), which will be the longest I've ever run. It's an organised event, so that should help with the mental aspect, as I find training on my own can become a bit of a chore! I spend a lot of time thinking, when I'm out running! It's tough and tiring fitting it all this training in, plus working full time. I seem to spend a lot of my time planning my diary when to fit in runs..... and checking the weather forecast... oh and buying lots of bananas! I might add that my friend is also running the marathon with me (for a different charity). We may or may not run together, depending on how we're feeling on the day. It's funny how you can have bursts of energy at times, then other times feel like you're running through treacle! As long as my friend and I meet at the end (as she's giving me a lift home!)
I'm not out to achieve an amazing time on the day of the race, I just want to get round the course in one piece! I know this will be a massive achievement for me and one that I feel grateful for the Aspergillosis Trust for giving me the opportunity to do!
Take care everyone and I'll speak soon!
Here's my next instalment in my marathon training blog.
So today I ran my longest training run....ever, 20 miles! It was a very blustery day and the wind was predominately in front of us. I suppose it's a good way to get a cheap facelift! Whenever the wind was behind us (rarely), my legs could just about keep up! It was like someone set the treadmill at high speed!
I had the usual nerves at the start of the race, (will the toilet queue go down in time before the start, will I need the toilet later on, will I have enough energy to keep going, ...... the usual). However, all of these were ok. I managed to keep running pretty much the whole of the race, just stopping about 5 times for 30 seconds max to get out my energy gels and a protein bar (which wasn't very nice), but means must!
My legs seemed to keep going somehow, it was my mind that was the struggle. I decided to use a trick that apparently Paula Radcliffe uses, that is counting backwards from 100 (in my head, I might add!). I tried this but found it too much to get past 80, so instead, started at 1 counting up to 100, keeping each number in time with my breathing. I must have counted to approximately 5,000 (in bursts of 100), from around mile 16. That's when it started to become challenging and energy levels needed more of a boost.
I was running with my friend, who's also training for Brighton Marathon. We kept each other in good company, managing to talk some reasonable conversation up until around mile 13, then we both gave up talking, instead just talking in our heads! :-)
Today's race was an organised 20-mile race, which also included a 20 km race for anyone wanting to that instead. Running today's mileage alongside lots of other like, I mean, crazy-minded people, made it more bearable! It's funny how so many people comment with the same comments, such as "why did we sign up to this?" or "it'll be worth it in the.... just think about the cake" (which was very welcome by the way!)
At least the rain stayed away! That's a blessing!
So a few day's rest now, until I begin my next week of training! Oh the joys!
Take care and I'll speak soon!
Maria
Blog number 3!
It's been a tough few weeks, not just from the training, but my CPA.
Since running the 20 mile race, I must have picked up a cold or something but not
the usual blowing nose, sore throat type cold, this has affectedmy chest. So I've been coughing up 'stuff' most days, mainly at night and morning. This has created a bit of a strain between my partner and me, as my coughing is disturbing both our sleep. So I've been in a separate bed for at least a week, which hasn't helped my sleeping either! I attended my next appointment at Wythenshawe last Friday (22nd March). The doctor (a new one, not seen before), was answering all my questions and explained a lot more I felt. Awaiting results of samples, but most probably stay on the same meds.
I've still been out running, just coughing more when running, but nothing to stop me. I've managed 2 long-ish runs this weekend (9 miles Saturday, 10 miles Sunday), which is always tough running the day after the other, but apparently, there is reasoning behind this. That is, you're supposed to feel more tired running on Sunday and this will give a true indication of the last 6 or so miles of the marathon. So if you can run on tired legs on a Sunday, the plan is you should be able to run the last stretch of the marathon! Also on 24th March, my running partner and I ran an organised race in Aberdale, Wales. We ran 16 miles, which was 5 times around a very pleasant (if a little hilly) nature reserve. The weather was lovely too. I particularly enjoyed the pit stops on each loop, where there was a free selection of various sweets, biscuits, savouries and drinks! It was a shame to leave it and to start another loop! (but there was always the next time round to try more treats!). There were lots of runners taking part, but not everyone ran the same distance; you could choose how many laps you wanted to run/walk (one lady was walking the route with walking poles). One crazy guy was planning on running 40 miles! Every time we passed him, he looked as fresh as a daisy!
With the weather turning warmer now, I have to be careful about my skin when out running (and in general), as the Voriconazole affects my skin. I wear a cap/hat, have factor 50 lip balm and put factor 50 on my face and hands, but I do find my hands get cold, so I have sleeves to cover them, but then they get hot, so I uncover them, which probably then wipes away the suncream! Aghhhhh! I'm noticing my legs are getting redder too! Plus my hair is still coming out when I brush it! Aghhhh!
Now with only 2 weeks to go (eeek), I can taper down my training, so no need for excessive mileage, but still need to get out there. This will be a welcome break. I read on a Running website (from Paula Radcliffe no less), that you should listen to your body and know when to have a rest; don't worry about sticking to a training plan if you can't. This is very good advice, and probably something I should have done on the
Wednesday last week, as because of my disturbed sleep, feeling low from relationship strain and constant running, I almost got run over out on a run! I did look before I crossed the road and I never wear headphones, but I guess it was a culmination of things. I felt a little shaken, but thankfully, I'm still here!
So the final push now. Two weeks to go! Hoping the weather stays kind,
especially on the big day!
Take care all and speak soon!
Maria
Blog No 4!
I'm not sticking to the training plan this week, as it actually suggests running 3 miles the day before the marathon! I know that I'll be doing a lot of walking around the marathon village, so that will be enough exercise for me thank you very much!
I ran 5 miles on Friday evening, and 10 miles Saturday morning, then around 5 miles this afternoon. That is it now! I was planning to run on Monday, but I woke up with a terrible headache, which lingered from Sunday afternoon/evening. I phoned work Monday morning to say I would be coming in but would be late as my head was so bad it was making me feel sick, (maybe it was a migraine?) They wanted me to stay home, but I'm terrible at being off, so I trundled into work about an hour and half later, taking the time off as time in lieu. I still didn't feel right, and didn't look right either, then proceeded to throw up 3 times during the day. I spent my lunch break sleeping in my chair. I hardly ate anything that day, (not ideal during marathon week!) I went home and slept for 2 hours, then woke up a little more refreshed and finally was able to eat something. The following day I felt better and started eating properly again. This was not the week to be ill and miss out on carbs (or anything for that matter!)
Anyway, there's nothing more I can do regarding my training, and any extra running may even be detrimental. When I ran today, I was noticing little issues with my ankle and knee, but I think I'm just paranoid now about picking up any injuries. I'm trying to keep calm about everything, but when you're a worryer like me, it's difficult!
I've glanced at the forecast for Sunday and it looks dry, which is great. Apparently there's an 'Active Experience' app, which you can use to follow runners during the race. You just type in their name (mine if you so wish :-)) and following their progress! I won't know my number until I collect it on Saturday.
Thank you all for following my journey so far! I look forward to finally running the race on Sunday and will update you afterwards!
Take care all and speak soon.
Maria
Tower to Tower 2
In 2013 15 cyclists and their trusty van driver cycled from Blackpool Tower to the Eiffel Tower raising over £10,000 for charity.
It is their 10 year anniversary and are doing it all over again and this time raising awareness and with your help hopefully some money for the Aspergillosis Trust.
Darren’s wife suffers from this rare, debilitating, and sometimes deady infection. The condition is becoming more and more prominent.
Please support at darren mcneil is fundraising for Aspergillosis Trust (justgiving.com)
The Sweeney Family
This year the Sweeney family are running the Belfast Marathon Relay (and one brave soul running the London Marathon!) in memory of mum and wife Lina Sweeney. Mum passed away in October from Pulmonary Aspergillosis. She had struggled with this illness for the last few years. Please donate and support the family in their challenge - Eamonn Sweeney is fundraising for Aspergillosis Trust (justgiving.com)
Doug Hutchinson
Doug is running the London Marathon in April 2023 and raising money for us. He ran the Royal Parks Half Marathon last year as well. Please support him if you can. Doug Hutchinson is fundraising for Aspergillosis Trust (justgiving.com)
Malcolm Johnston
Our family has been living with Aspergillosis and its effects for almost 10 years. There are different types of the condition, Malcolm has Chronic Pulmonary Aspergillosis.
As it is a relatively rare condition we have found it difficult to source accessible, age appropriate information for our children. Through The Aspergillosis Trust we would love to have some readily available resources made for ourselves and other families in our situation. It would just be one less thing for families to think about after diagnosis ; Knowledge is power.
Maureen and three of the children are going to complete the seven highest mountain summits in Northern Ireland. We will do this by taking on two summits at a time. We have 3 exact dates over 6 weeks planned but, knowing from experience, these dates may change. The challenge will be completed by May and we will keep you posted. Our first hike hopefully will be Saturday 25th Feb. Please donate if you can - Malcolm Johnston is fundraising for Aspergillosis Trust (justgiving.com)
Lorraine and Kevin
Last year Lorraine raised funds by rowing to Wythenshawe Hospital in Manchester. This year she wanted to row there and back, approx 400 miles, and do a half marathon. Unfortunately, she is unable to do the half marathon due to ill health in time for World Aspergillosis Day but her husband Kevin is going to complete the challenge on her behalf. Ever competitive Kevin says he will either row a full marathon or 100km on a static bike.
She is raising money for Aspergillosis Trust for World Aspergillosis Day. Lorraine suffers from Aspergillosis and this charity's main aim is to support all with the condition.
Total raised £560.00 plus £78.75 GiftAid.
Matt Stratton
Matthew is running 5k in memory of his mum, Susan, on 6th November. Sadly, Susan passed away on the 6th November 2021. You can donate here Matt Stratton is fundraising for Aspergillosis Trust (justgiving.com)
Total raised £470.00 plus £87.50 GiftAid
Grace’s Everest Challenge
Grace Jain Dean aged 12 from Thelwall, Warrington.
She is going to do these climbs throughout July and August (school holidays). She will be climbing in Derbyshire, Lake District and Wales.
She hopes to raise over £500.
You can donate and help her to reach her goal and spread awareness. Jill Fairweather is fundraising for Aspergillosis Trust (justgiving.com)
Total raised £115.49 plus £18.75 GiftAid
London Marathon 2022
Royal Parks Half Marathon
This stunning central London Half Marathon, takes in some of the capital's world-famous landmarks on closed roads, and four of London's eight Royal Parks - Hyde Park, The Green Park, St James's Park and Kensington Gardens. Aspergillosis Trust have 3 runners taking part and raising money for us.
Doug Hutchinson, Steven Phillips and Almir Alberto. Please donate to - Doug Hutchinson is fundraising for Aspergillosis Trust (justgiving.com)
Total raised - £675.00 plus £142.50 GiftAid.
Great North Run
This event takes place on 11th September 2022. Dave Cairns is taking part and is fundraising for us. Please support Dave at Lisa McNeil is fundraising for Aspergillosis Trust (justgiving.com)
Total raised £515.00 plus £98.75 GiftAid
Kyle Kuster
Kyle will be running 6K to raise money in memory of his father who sadly passed away recently due to complications due to Aspergillosis.
He will be undertaking this run a few days before his father's birthday. The event takes place on the 6th October and you can read more about Allan and support the event here:-
Fundraiser by Kyle Kuster : Remembering Allan Kuster - An Incredible Father (gofundme.com)
The run was completed on the 9th October. Thank you so much to Kyle and his family.
Yvonne Gibson
Is raising monies for two charities close to her heart (Aspergillosis Trust and Brain Tumour Research).
Her husband passed away 13 years ago with both these illnesses, he was aged 55. Over the years there seems to be a lot of people with Brain Tumours of various kinds. With the Covid pandemic a lot of charities have suffered financially. I have so far managed to raise £375.00. Any contribution amounts, no matter how small, will go to help in research. Thanking you all in advance. This will take place on 18th July 2021.
https://www.justgiving.com/crowdfunding/yvonne-gibson-3?utm_term=XNKMNezJP
Yvonne successfully completed her Skydive on the 18th July.
Maria Giuliani
Maria Giuliani will be running the Brighton Marathon in April. She is going to write a piece about her reasons why she is attempting this.
MARIA’S STORY
Hello all,
I thought I'd share with you my big challenge this year.... I'm going to be running the Brighton Marathon in April! I've never ran a full marathon before, but have run half marathons. It's a big step....literally!
I have CPA and was diagnosed in 2016. Previous to this I had hypersensitivitiy pneumonitis (extrinsic allergcalvelotis), and several pneumothoraxes, (collapsed lung) resulting in a pleurectomy. I won't go into the detail too much about all of these, as I expect you're all familiar/aware of them. However, needless to say, it was a shock to suddenly become so ill at the start of all of this, back in 2006. I was hoping to start university (as a mature student), doing Performing Arts, but had to defer my place for a year because I was too poorly. I couldn't even walk up a flight of stairs and I remember one time having oxygen delivered to me at home.
Previous to all of this, I have always been fit and healthy. I used to run regularly, cycle, aerobics and have always been musical. Suddenly, all this came to a halt. Because of a delay in diagnosing my initial condition, that is where my lungs become scarred, which subsequently brought on Aspergillosis. I remember being in hospital and not knowing what I had as was awaiting to have a biopsy uner general, because I was too ill for keyhole. I was thinking, what is going on... as well as feeling scared.... and fed up of being in hospital.
Moving forward several years, after being on and off steroids, getting better, then getting ill again, being put on anti-fungals (Itraconazole), I was eventually referred to Wythenshaw Hospital, where my condition has been monitored and treated. At the moment, I feel great (apart from the side-effects of a high dose of Voriconazole). I almost feel I don't need the medication anymore, but I know previously that when I stopped, I became ill again. But who knows what will happen. All I know is that I'm making the most of feeling great at the moment and wanted to use this opportunity to raise awareness and funds for the Aspergillosis Trust, as without them, I would be in a very bad way. I would also like to add how grateful I am to my partner for being there for me and especially for driving me all the way to Manchester and back for appointments! That's always a very long day indeed!
So, onto the marathon! I started about 3 weeks late into my training plan, but have steadily caught up. I've not kept to the rigid plan as it requires, as life gets in the way, but I'm doing what I can to keep up! So far, my longest miles training (during a week) has been around 45 miles! I have a 20 mile race this weekend (16th March), which will be the longest I've ever run. It's an organised event, so that should help with the mental aspect, as I find training on my own can become a bit of a chore! I spend a lot of time thinking, when I'm out running! It's tough and tiring fitting it all this training in, plus working full time. I seem to spend a lot of my time planning my diary when to fit in runs..... and checking the weather forecast... oh and buying lots of bananas! I might add that my friend is also running the marathon with me (for a different charity). We may or may not run together, depending on how we're feeling on the day. It's funny how you can have bursts of energy at times, then other times feel like you're running through treacle! As long as my friend and I meet at the end (as she's giving me a lift home!)
I'm not out to achieve an amazing time on the day of the race, I just want to get round the course in one piece! I know this will be a massive achievement for me and one that I feel grateful for the Aspergillosis Trust for giving me the opportunity to do!
Take care everyone and I'll speak soon!
Here's my next instalment in my marathon training blog.
So today I ran my longest training run....ever, 20 miles! It was a very blustery day and the wind was predominately in front of us. I suppose it's a good way to get a cheap facelift! Whenever the wind was behind us (rarely), my legs could just about keep up! It was like someone set the treadmill at high speed!
I had the usual nerves at the start of the race, (will the toilet queue go down in time before the start, will I need the toilet later on, will I have enough energy to keep going, ...... the usual). However, all of these were ok. I managed to keep running pretty much the whole of the race, just stopping about 5 times for 30 seconds max to get out my energy gels and a protein bar (which wasn't very nice), but means must!
My legs seemed to keep going somehow, it was my mind that was the struggle. I decided to use a trick that apparently Paula Radcliffe uses, that is counting backwards from 100 (in my head, I might add!). I tried this but found it too much to get past 80, so instead, started at 1 counting up to 100, keeping each number in time with my breathing. I must have counted to approximately 5,000 (in bursts of 100), from around mile 16. That's when it started to become challenging and energy levels needed more of a boost.
I was running with my friend, who's also training for Brighton Marathon. We kept each other in good company, managing to talk some reasonable conversation up until around mile 13, then we both gave up talking, instead just talking in our heads! :-)
Today's race was an organised 20-mile race, which also included a 20 km race for anyone wanting to that instead. Running today's mileage alongside lots of other like, I mean, crazy-minded people, made it more bearable! It's funny how so many people comment with the same comments, such as "why did we sign up to this?" or "it'll be worth it in the.... just think about the cake" (which was very welcome by the way!)
At least the rain stayed away! That's a blessing!
So a few day's rest now, until I begin my next week of training! Oh the joys!
Take care and I'll speak soon!
Maria
Blog number 3!
It's been a tough few weeks, not just from the training, but my CPA.
Since running the 20 mile race, I must have picked up a cold or something but not
the usual blowing nose, sore throat type cold, this has affectedmy chest. So I've been coughing up 'stuff' most days, mainly at night and morning. This has created a bit of a strain between my partner and me, as my coughing is disturbing both our sleep. So I've been in a separate bed for at least a week, which hasn't helped my sleeping either! I attended my next appointment at Wythenshawe last Friday (22nd March). The doctor (a new one, not seen before), was answering all my questions and explained a lot more I felt. Awaiting results of samples, but most probably stay on the same meds.
I've still been out running, just coughing more when running, but nothing to stop me. I've managed 2 long-ish runs this weekend (9 miles Saturday, 10 miles Sunday), which is always tough running the day after the other, but apparently, there is reasoning behind this. That is, you're supposed to feel more tired running on Sunday and this will give a true indication of the last 6 or so miles of the marathon. So if you can run on tired legs on a Sunday, the plan is you should be able to run the last stretch of the marathon! Also on 24th March, my running partner and I ran an organised race in Aberdale, Wales. We ran 16 miles, which was 5 times around a very pleasant (if a little hilly) nature reserve. The weather was lovely too. I particularly enjoyed the pit stops on each loop, where there was a free selection of various sweets, biscuits, savouries and drinks! It was a shame to leave it and to start another loop! (but there was always the next time round to try more treats!). There were lots of runners taking part, but not everyone ran the same distance; you could choose how many laps you wanted to run/walk (one lady was walking the route with walking poles). One crazy guy was planning on running 40 miles! Every time we passed him, he looked as fresh as a daisy!
With the weather turning warmer now, I have to be careful about my skin when out running (and in general), as the Voriconazole affects my skin. I wear a cap/hat, have factor 50 lip balm and put factor 50 on my face and hands, but I do find my hands get cold, so I have sleeves to cover them, but then they get hot, so I uncover them, which probably then wipes away the suncream! Aghhhhh! I'm noticing my legs are getting redder too! Plus my hair is still coming out when I brush it! Aghhhh!
Now with only 2 weeks to go (eeek), I can taper down my training, so no need for excessive mileage, but still need to get out there. This will be a welcome break. I read on a Running website (from Paula Radcliffe no less), that you should listen to your body and know when to have a rest; don't worry about sticking to a training plan if you can't. This is very good advice, and probably something I should have done on the
Wednesday last week, as because of my disturbed sleep, feeling low from relationship strain and constant running, I almost got run over out on a run! I did look before I crossed the road and I never wear headphones, but I guess it was a culmination of things. I felt a little shaken, but thankfully, I'm still here!
So the final push now. Two weeks to go! Hoping the weather stays kind,
especially on the big day!
Take care all and speak soon!
Maria
Blog No 4!
I'm not sticking to the training plan this week, as it actually suggests running 3 miles the day before the marathon! I know that I'll be doing a lot of walking around the marathon village, so that will be enough exercise for me thank you very much!
I ran 5 miles on Friday evening, and 10 miles Saturday morning, then around 5 miles this afternoon. That is it now! I was planning to run on Monday, but I woke up with a terrible headache, which lingered from Sunday afternoon/evening. I phoned work Monday morning to say I would be coming in but would be late as my head was so bad it was making me feel sick, (maybe it was a migraine?) They wanted me to stay home, but I'm terrible at being off, so I trundled into work about an hour and half later, taking the time off as time in lieu. I still didn't feel right, and didn't look right either, then proceeded to throw up 3 times during the day. I spent my lunch break sleeping in my chair. I hardly ate anything that day, (not ideal during marathon week!) I went home and slept for 2 hours, then woke up a little more refreshed and finally was able to eat something. The following day I felt better and started eating properly again. This was not the week to be ill and miss out on carbs (or anything for that matter!)
Anyway, there's nothing more I can do regarding my training, and any extra running may even be detrimental. When I ran today, I was noticing little issues with my ankle and knee, but I think I'm just paranoid now about picking up any injuries. I'm trying to keep calm about everything, but when you're a worryer like me, it's difficult!
I've glanced at the forecast for Sunday and it looks dry, which is great. Apparently there's an 'Active Experience' app, which you can use to follow runners during the race. You just type in their name (mine if you so wish :-)) and following their progress! I won't know my number until I collect it on Saturday.
Thank you all for following my journey so far! I look forward to finally running the race on Sunday and will update you afterwards!
Take care all and speak soon.
Maria
Lorraine and Kevin
Matt Stratton
Matthew is running 5k in memory of his mum, Susan, on 6th November. Sadly, Susan passed away on the 6th November 2021. You can donate here Matt Stratton is fundraising for Aspergillosis Trust (justgiving.com)
Grace’s Everest Challenge
Grace Jain Dean aged 12 from Thelwall, Warrington.
She is going to do these climbs throughout July and August (school holidays). She will be climbing in Derbyshire, Lake District and Wales.
She hopes to raise over £500.
You can donate and help her to reach her goal and spread awareness. Jill Fairweather is fundraising for Aspergillosis Trust (justgiving.com)
London Marathon 2022
Royal Parks Half Marathon
This stunning central London Half Marathon, takes in some of the capital's world-famous landmarks on closed roads, and four of London's eight Royal Parks - Hyde Park, The Green Park, St James's Park and Kensington Gardens. Aspergillosis Trust have 3 runners taking part and raising money for us.
Doug Hutchinson, Steven Phillips and Almir Alberto. Please donate to - Doug Hutchinson is fundraising for Aspergillosis Trust (justgiving.com)
Great North Run
This event takes place on 11th September 2022. Dave Cairns is taking part and is fundraising for us. Please support Dave at Lisa McNeil is fundraising for Aspergillosis Trust (justgiving.com)
Kyle Kuster
Kyle will be running 6K to raise money in memory of his father who sadly passed away recently due to complications due to Aspergillosis.
He will be undertaking this run a few days before his father's birthday. The event takes place on the 6th October and you can read more about Allan and support the event here:-
Fundraiser by Kyle Kuster : Remembering Allan Kuster - An Incredible Father (gofundme.com)
The run was completed on the 9th October. Thank you so much to Kyle and his family.
Yvonne Gibson
Is raising monies for two charities close to her heart (Aspergillosis Trust and Brain Tumour Research).
Her husband passed away 13 years ago with both these illnesses, he was aged 55. Over the years there seems to be a lot of people with Brain Tumours of various kinds. With the Covid pandemic a lot of charities have suffered financially. I have so far managed to raise £375.00. Any contribution amounts, no matter how small, will go to help in research. Thanking you all in advance. This will take place on 18th July 2021.
https://www.justgiving.com/crowdfunding/yvonne-gibson-3?utm_term=XNKMNezJP
Yvonne successfully completed her Skydive on the 18th July.
Maria Giuliani
Maria Giuliani will be running the Brighton Marathon in April. She is going to write a piece about her reasons why she is attempting this.
MARIA’S STORY
Hello all,
I thought I'd share with you my big challenge this year.... I'm going to be running the Brighton Marathon in April! I've never ran a full marathon before, but have run half marathons. It's a big step....literally!
I have CPA and was diagnosed in 2016. Previous to this I had hypersensitivitiy pneumonitis (extrinsic allergcalvelotis), and several pneumothoraxes, (collapsed lung) resulting in a pleurectomy. I won't go into the detail too much about all of these, as I expect you're all familiar/aware of them. However, needless to say, it was a shock to suddenly become so ill at the start of all of this, back in 2006. I was hoping to start university (as a mature student), doing Performing Arts, but had to defer my place for a year because I was too poorly. I couldn't even walk up a flight of stairs and I remember one time having oxygen delivered to me at home.
Previous to all of this, I have always been fit and healthy. I used to run regularly, cycle, aerobics and have always been musical. Suddenly, all this came to a halt. Because of a delay in diagnosing my initial condition, that is where my lungs become scarred, which subsequently brought on Aspergillosis. I remember being in hospital and not knowing what I had as was awaiting to have a biopsy uner general, because I was too ill for keyhole. I was thinking, what is going on... as well as feeling scared.... and fed up of being in hospital.
Moving forward several years, after being on and off steroids, getting better, then getting ill again, being put on anti-fungals (Itraconazole), I was eventually referred to Wythenshaw Hospital, where my condition has been monitored and treated. At the moment, I feel great (apart from the side-effects of a high dose of Voriconazole). I almost feel I don't need the medication anymore, but I know previously that when I stopped, I became ill again. But who knows what will happen. All I know is that I'm making the most of feeling great at the moment and wanted to use this opportunity to raise awareness and funds for the Aspergillosis Trust, as without them, I would be in a very bad way. I would also like to add how grateful I am to my partner for being there for me and especially for driving me all the way to Manchester and back for appointments! That's always a very long day indeed!
So, onto the marathon! I started about 3 weeks late into my training plan, but have steadily caught up. I've not kept to the rigid plan as it requires, as life gets in the way, but I'm doing what I can to keep up! So far, my longest miles training (during a week) has been around 45 miles! I have a 20 mile race this weekend (16th March), which will be the longest I've ever run. It's an organised event, so that should help with the mental aspect, as I find training on my own can become a bit of a chore! I spend a lot of time thinking, when I'm out running! It's tough and tiring fitting it all this training in, plus working full time. I seem to spend a lot of my time planning my diary when to fit in runs..... and checking the weather forecast... oh and buying lots of bananas! I might add that my friend is also running the marathon with me (for a different charity). We may or may not run together, depending on how we're feeling on the day. It's funny how you can have bursts of energy at times, then other times feel like you're running through treacle! As long as my friend and I meet at the end (as she's giving me a lift home!)
I'm not out to achieve an amazing time on the day of the race, I just want to get round the course in one piece! I know this will be a massive achievement for me and one that I feel grateful for the Aspergillosis Trust for giving me the opportunity to do!
Take care everyone and I'll speak soon!
Here's my next instalment in my marathon training blog.
So today I ran my longest training run....ever, 20 miles! It was a very blustery day and the wind was predominately in front of us. I suppose it's a good way to get a cheap facelift! Whenever the wind was behind us (rarely), my legs could just about keep up! It was like someone set the treadmill at high speed!
I had the usual nerves at the start of the race, (will the toilet queue go down in time before the start, will I need the toilet later on, will I have enough energy to keep going, ...... the usual). However, all of these were ok. I managed to keep running pretty much the whole of the race, just stopping about 5 times for 30 seconds max to get out my energy gels and a protein bar (which wasn't very nice), but means must!
My legs seemed to keep going somehow, it was my mind that was the struggle. I decided to use a trick that apparently Paula Radcliffe uses, that is counting backwards from 100 (in my head, I might add!). I tried this but found it too much to get past 80, so instead, started at 1 counting up to 100, keeping each number in time with my breathing. I must have counted to approximately 5,000 (in bursts of 100), from around mile 16. That's when it started to become challenging and energy levels needed more of a boost.
I was running with my friend, who's also training for Brighton Marathon. We kept each other in good company, managing to talk some reasonable conversation up until around mile 13, then we both gave up talking, instead just talking in our heads! :-)
Today's race was an organised 20-mile race, which also included a 20 km race for anyone wanting to that instead. Running today's mileage alongside lots of other like, I mean, crazy-minded people, made it more bearable! It's funny how so many people comment with the same comments, such as "why did we sign up to this?" or "it'll be worth it in the.... just think about the cake" (which was very welcome by the way!)
At least the rain stayed away! That's a blessing!
So a few day's rest now, until I begin my next week of training! Oh the joys!
Take care and I'll speak soon!
Maria
Blog number 3!
It's been a tough few weeks, not just from the training, but my CPA.
Since running the 20 mile race, I must have picked up a cold or something but not
the usual blowing nose, sore throat type cold, this has affectedmy chest. So I've been coughing up 'stuff' most days, mainly at night and morning. This has created a bit of a strain between my partner and me, as my coughing is disturbing both our sleep. So I've been in a separate bed for at least a week, which hasn't helped my sleeping either! I attended my next appointment at Wythenshawe last Friday (22nd March). The doctor (a new one, not seen before), was answering all my questions and explained a lot more I felt. Awaiting results of samples, but most probably stay on the same meds.
I've still been out running, just coughing more when running, but nothing to stop me. I've managed 2 long-ish runs this weekend (9 miles Saturday, 10 miles Sunday), which is always tough running the day after the other, but apparently, there is reasoning behind this. That is, you're supposed to feel more tired running on Sunday and this will give a true indication of the last 6 or so miles of the marathon. So if you can run on tired legs on a Sunday, the plan is you should be able to run the last stretch of the marathon! Also on 24th March, my running partner and I ran an organised race in Aberdale, Wales. We ran 16 miles, which was 5 times around a very pleasant (if a little hilly) nature reserve. The weather was lovely too. I particularly enjoyed the pit stops on each loop, where there was a free selection of various sweets, biscuits, savouries and drinks! It was a shame to leave it and to start another loop! (but there was always the next time round to try more treats!). There were lots of runners taking part, but not everyone ran the same distance; you could choose how many laps you wanted to run/walk (one lady was walking the route with walking poles). One crazy guy was planning on running 40 miles! Every time we passed him, he looked as fresh as a daisy!
With the weather turning warmer now, I have to be careful about my skin when out running (and in general), as the Voriconazole affects my skin. I wear a cap/hat, have factor 50 lip balm and put factor 50 on my face and hands, but I do find my hands get cold, so I have sleeves to cover them, but then they get hot, so I uncover them, which probably then wipes away the suncream! Aghhhhh! I'm noticing my legs are getting redder too! Plus my hair is still coming out when I brush it! Aghhhh!
Now with only 2 weeks to go (eeek), I can taper down my training, so no need for excessive mileage, but still need to get out there. This will be a welcome break. I read on a Running website (from Paula Radcliffe no less), that you should listen to your body and know when to have a rest; don't worry about sticking to a training plan if you can't. This is very good advice, and probably something I should have done on the
Wednesday last week, as because of my disturbed sleep, feeling low from relationship strain and constant running, I almost got run over out on a run! I did look before I crossed the road and I never wear headphones, but I guess it was a culmination of things. I felt a little shaken, but thankfully, I'm still here!
So the final push now. Two weeks to go! Hoping the weather stays kind,
especially on the big day!
Take care all and speak soon!
Maria
Blog No 4!
I'm not sticking to the training plan this week, as it actually suggests running 3 miles the day before the marathon! I know that I'll be doing a lot of walking around the marathon village, so that will be enough exercise for me thank you very much!
I ran 5 miles on Friday evening, and 10 miles Saturday morning, then around 5 miles this afternoon. That is it now! I was planning to run on Monday, but I woke up with a terrible headache, which lingered from Sunday afternoon/evening. I phoned work Monday morning to say I would be coming in but would be late as my head was so bad it was making me feel sick, (maybe it was a migraine?) They wanted me to stay home, but I'm terrible at being off, so I trundled into work about an hour and half later, taking the time off as time in lieu. I still didn't feel right, and didn't look right either, then proceeded to throw up 3 times during the day. I spent my lunch break sleeping in my chair. I hardly ate anything that day, (not ideal during marathon week!) I went home and slept for 2 hours, then woke up a little more refreshed and finally was able to eat something. The following day I felt better and started eating properly again. This was not the week to be ill and miss out on carbs (or anything for that matter!)
Anyway, there's nothing more I can do regarding my training, and any extra running may even be detrimental. When I ran today, I was noticing little issues with my ankle and knee, but I think I'm just paranoid now about picking up any injuries. I'm trying to keep calm about everything, but when you're a worryer like me, it's difficult!
I've glanced at the forecast for Sunday and it looks dry, which is great. Apparently there's an 'Active Experience' app, which you can use to follow runners during the race. You just type in their name (mine if you so wish :-)) and following their progress! I won't know my number until I collect it on Saturday.
Thank you all for following my journey so far! I look forward to finally running the race on Sunday and will update you afterwards!
Take care all and speak soon.
Maria
To Help Support Us You Can Click On The Button Below To Donate To Our Trust
Legacies
Leaving money to Aspergillosis Trust in your will is a great way of ensuring you remember our work. People often use these donations in the UK to ensure that their estate (including property, savings, investments) falls below the limit for Inheritance Tax (charged at 40% over £325 000 estate value). The result is that Aspergillosis Trust would get your money rather than the Inland Revenue.
These arrangements are best made by a solicitor who specialises in this field.
Many charities have very full details on what to do. One of the best is Cancer Research UK.
If you use How to leave a gift in your Will | Cancer Research UK you will just have to change their details to that of the Aspergillosis Trust, the rest of the information applies just as well to the Aspergillosis Trust as it does Cancer Research UK.
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