News & Events
We are Recruiting
Aspergillosis is a rare debilitating and sometimes deadly infection. The Aspergillosis Trust is a patient-led group, committed to working with anyone who has an interest in supporting our work or learning from our experiences.
Our vision is to contribute towards finding the best treatments, and ultimately a cure, for all forms of Aspergillosis. In order to achieve this, we aim to provide a range of information and support to new and existing patients as well as using our knowledge and experience to inform, and on occasions fund, research into new or existing treatments.
We are a passionate small group of volunteer trustees and want like minded enthusiasts to join us particularly if you have experience of either working within the charity sector or being involved with patient advocacy work, however these are not essential. Depending on your experience and availability you will be asked to attend a minimum of 4 trustee meetings a year. You will be expected alongside your co-trustees to decide what will best enable the charity to meet its aims. You may also be asked to represent Aspergillosis Trust at conferences, webinars and working on projects.
We are a patient led charity and therefore we are seeking people who have experience of this disease, whether as a patient, a health professional or family or friend of someone affected by the condition.
If you are interested in getting involved in any way please get in touch with us and we can have a chat.
Best Wishes
Lisa McNeil
Chair
Aspergillosis Trust
On the 7th June Aspergillosis Trust became a Charity.
Charity Commission No 1194699
Aspergillosis Trust are World Lung Day partners with the Forum of International Respiratory Societies which will be held on 25th September 2020
Aspergillosis Trust will be exhibiting a poster at the ELF Patient Organisation Day on the 5th September 2020.
This is part of the ERS Congress which this year will be virtual because of Covid 19.
Jennifer Shelton will be presenting a poster on her PhD research at Stem for Britain.
This will be held at the House of Commons on 9th March and coincides with British Science Week 2020. She will be handing out Aspergillosis Trust Patient Information Leaflets.
In collaboration with Medics 4 Rare Diseases (M4RD), BL Rare Disease Spotlight will be hosting Fran Pearson, a patient who was diagnosed with Aspergillosis and Dr Darius Armstrong-James, a consultant in Infectious Disease and Mycology on the 3rd of February.
You will have the opportunity to learn more about the patient's experience of being diagnosed with a rare infectious disease and the challenges faced by doctors when diagnosing patients with infectious diseases.
Medics 4 Rare Diseases (M4RD) is a charity founded by a Barts alum - come along to hear more from Dr Lucy McKay about this!
Watch the video at https://www.facebook.com/BLIDSoc/videos/613592952798238/?hc_location=ufi for the talk with Fran. The link for the clinical talk for students is https://www.facebook.com/BLIDSoc/videos/534083584132833/
Jennifer Shelton has a stand at Imperial Lates on 12th November.
She will give a talk about fungal pathogens and her Citizen Science Projects as well as aspergillosis. She will be displaying some Aspergillosis Trust posters as well as leaflets.
On the 8th October AT were at The Manchester Rare Disease Showcase with the National Aspergillosis Centre.
We were represented at RAREsummit19 on 23rd September.
It is being run by Cambridge Rare Disease Network and the theme is Patients as Partners. A poster has been made with the help of the National Aspergillosis Centre and there will also be our own poster, leaflets, as well as awareness items and patient stories. This was our first conference/meeting.
