The Aspergillosis Trust is not a charity, as we are too small to register. Also as we are people with aspergillosis running it, we are not well enough to be actively involved in regular committee meetings and preparing charity accounts. So all the fundraising goes directly to the Fungal Infection Trust a registered charity.
We are aware that there are many more people who have yet to get a fully correct diagnosis. Therefore they are not getting treated in a way that will help them the most.
A typical example is someone who has had asthma since childhood, who has steadily become worse over the years, despite having extra treatment for Asthma.
A GP or even respiratory specialist doctor, may seem to reach the point of trying everything they know to help. This may include oral steroids, steroid inhaler or repeated courses of antibiotics, but with no impact upon your illness resulting in hospital admissions. This can affect people at any age. Other examples can be people who have had TB, or who smoke and have Chronic Obstructive Pulmonary Disease (COPD).
Chronic aspergillosis is usually incurable and debilitating, but manageable with the right treatment. So it is vitally important to be referred to a local specialist respiratory service with minimal delay. They can then refer to a tertiary (highly specialised) centre. For further details see https://aspergillosis.org/aspergillosis-specialist-centres/ and https://aspergillosistrust.org/media/
The Fungal Infection Trust (FIT) has been supporting research and awareness of aspergillosis since 1991. One way you can help us fight Aspergillosis is to donate via the button below.