In collaboration with Medics 4 Rare Diseases (M4RD), BL Rare Disease Spotlight will be hosting Fran Pearson, a patient who was diagnosed with Aspergillosis and Dr Darius Armstrong-James, a consultant in Infectious Disease and Mycology on the 3rd of February. You will have the opportunity to learn more about the patient’s experience of being diagnosed with a rare infectious disease and the challenges faced by doctors when diagnosing patients with infectious diseases.
Medics 4 Rare Diseases (M4RD) is a charity founded by a Barts alum – come along to hear more from Dr Lucy McKay about this!
Jennifer Shelton has a stand at Imperial Lates on 12th November. She will give a talk about fungal pathogens and her Citizen Science Projects as well as aspergillosis. She will be displaying some Aspergillosis Trust posters as well as leaflets.
On the 8th October AT were at The Manchester Rare Disease Showcase with the National Aspergillosis Centre.
We were represented at RAREsummit19 on 23rd September. It is being run by Cambridge Rare Disease Network and the theme is Patients as Partners. A poster has been made with the help of the National Aspergillosis Centre and there will also be our own poster, leaflets, as well as awareness items and patient stories. This was our first conference/meeting.