About Us

Welcome to our new website

 

 

We are a patient group with the most common  types of Aspergillosis, Pulmonary Aspergillosis. This causes severe breathing difficulties, fatigue and in some cases large frightening lung bleeds and permanent lung damage. The term Aspergillosis covers a group of diseases that include chronic, incurable infections and severe allergies. Aspergillosis often affects people with existing Asthma, especially those with severe Asthma and seems to make Asthma worse. Co-existing infections are an additional problem in Aspergillosis, especially where there is lung damage such as bronchiectasis (permanently widened airways) or cavities caused by Aspergillosis infection. Common microbes are Pseudomonas and Non-Tuberculous Mycobacteria.

Aspergillosis can also affect people with a weakened immune system, and in this form can rapidly kill. This might be due to cancer chemotherapy.   It may also arise from immunosuppressive therapy used to stop organ rejection, in people who have received a transplant.

Other groups of people affected include those with a genetic (inherited) Primary Immunodeficiency Syndrome, or viral/acquired immunodeficiency syndrome such as HIV/AIDs. One of the main difficulties with awareness is that illness caused by Aspergillosis in people with these other illnesses often goes unrecorded.

Aspergillosis is  a rare, debilitating and sometimes deadly infection. It can attack people of any age. Aspergillosis Trust also aims to raise funding for desperately needed research. For more details, please see the resources offered by the Aspergillus website.

 

 

 

 

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